Just about 2 months ago, I said out loud, “We’re so lucky, Delaney has never been in the hospital.”
Well, you know how that works, right? Say it, forget to knock on wood – well, I might as well have requested a bed in the Emergency Room. After 5 full days of a fever 101-103 and a negative flu swab, we felt compelled to visit our pediatrician.
Based on the sweet girl’s fever, chapped lips, swollen tongue, convunctivits in her eyes, and overall crabbiness, we were given a one-way ticket to Children’s Hospital for fear of Kawasakis disease. I knew next to nothing about Kawasakis beyond the briefing our doctor gave – if Delaney had the disease, we had a finite period of time in which to treat her – otherwise there is the potential of serious heart problems – and she had never seen a child not fully recover, but couldn’t make promises.
Delaney is fine. She didn’t have Kawasakis. A second flu swab came up positive.
It was my job during this scary time to Speak Up for my daughter. Sadly – not all children have a voice, but a new campaign is aimed at changing that – the goal – to make sure kid’s voices are heard when health care reform decisions are being made.
Add your voice (upload a video) to the conversation – some videos will be shown to members of Congress.
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